Education Center
NephU is an engaged community of health care professionals and advocates collaborating to improve kidney health. The experts at NephU have partnered with OPEN to develop scientifically validated resources that explore topics about living or caring for someone with kidney disease.
KIDNEY HEALTH RESOURCES
Developed by NephU
Select a category below to find topics related to kidney health and tips for living or caring for someone with kidney disease.
At Risk for ADPKD?
ADPKD, or autosomal dominant polycystic kidney disease, accounts for most cases of polycystic kidney disease (9 out of 10). Some people with ADPKD are at risk for accelerated disease progression.
Working With Your Healthcare Provider to Help Manage ADPKD
Living with a chronic kidney disease like ADPKD means you face decisions throughout your lifetime as your illness progresses. Your healthcare providers can help you make these decisions.
Supporting Your Loved One With ADPKD
Talking about ADPKD is a personal decision and may be difficult for your loved one struggling with ADPKD. Not knowing what to say can add to your stress and add difficulty in caring for him/her.
Where Can I Find Help? Patient and Caregiver Support
There are many organizations and resources in the PKD community available to help you and your loved one with ADPKD. To learn more and connect with others going through similar experiences, visit the sites below.
Talking With Employers
Talking about your ADPKD diagnosis and condition is your decision to make. You decide if, when, and to whom you share your story. If you decide to talk about it, do it in a way that feels most comfortable to you.
UNDERSTANDING ADPKD
Take a closer look at ADPKD to better understand this disease.
STORIES ABOUT LIVING OR CARING FOR SOMEONE WITH KIDNEY DISEASE
ARE YOU A HEALTHCARE PROVIDER?
NephU is a community of health care professionals and advocates working to improve kidney health through increased awareness, collaboration, and knowledge-sharing. Their mission is to improve the future outcomes for individuals with kidney disease and other related conditions. You can find a variety of in-depth resources for healthcare providers on their website.