ADPKD, or autosomal dominant polycystic kidney disease, accounts for most cases of polycystic kidney disease (9 out of 10). Some people with ADPKD are at risk for accelerated disease progression.

Living with a chronic kidney disease like ADPKD means you face decisions throughout your lifetime as your illness progresses. Your healthcare providers can help you make these decisions.

Talking about ADPKD is a personal decision and may be difficult for your loved one struggling with ADPKD. Not knowing what to say can add to your stress and add difficulty in caring for him/her.

There are many organizations and resources in the PKD community available to help you and your loved one with ADPKD. To learn more and connect with others going through similar experiences, visit the sites below.

Talking about your ADPKD diagnosis and condition is your decision to make. You decide if, when, and to whom you share your story. If you decide to talk about it, do it in a way that feels most comfortable to you.

Take a closer look at ADPKD to better understand this disease.