Community Stories

Jay shares what it’s like to live with Alzheimer’s and the neuropsychiatric symptoms (NPS) that are common with dementia.

Shon shares what it’s like to care for a family member living with Alzheimer’s and the neuropsychiatric symptoms that can accompany dementia.

Terrie shares what it’s like to live with Alzheimer’s and the neuropsychiatric symptoms (NPS) that are common with dementia.

Greg and Mary Catherine share some specific strategies that help them: diet, sleep, exercise, journaling, routine, and seeking out a support system.

Greg and Mary Catherine share their advice on seeking early diagnosis in order to explain why communication is so important and how it enables patients and their families to get the support they need.

Recognizing that a loved one has symptoms of Alzheimer's disease and speaking to them about it can be difficult, but Samantha thinks it's the best way forward.

Meryl describes how the symptom of agitation manifested as her husband, Harvey’s, Alzheimer's disease progressed. His agitation became severe enough where it would sometimes become physical. Meryl shares her experience, and emphasizes the need for research in identifying early signs of dementia.

At the time of Harvey’s Alzheimer's diagnosis, it was considered a death sentence. Meryl describes how she kept Harvey’s more aggressive behaviors a secret, isolating herself, and how she was nervous when family or friends would reach out to help.

Meryl’s husband, Harvey, was a physician/researcher in the prime of his career when he first started exhibiting signs of Alzheimer's. She shares her struggles getting him diagnosed at a time when there wasn’t a lot of awareness of the disease. He was repeatedly misdiagnosed for 4.5 years until he received a formal Alzheimer's diagnosis after a two month stay in a hospital.

Meryl speaks about the importance of advocacy in her life and the urgency for information and access to clinical trials.