Length: 7:59
Journeys and Lives with ADPKD
Tamara, Noelia, and Lisa share their ADPKD journeys, lifestyle changes, advocacy efforts, and how to stay positive.
Length: 3:49
Lisa’s 36-Year ADPKD Journey
Lisa recounts her 36-year journey with ADPKD, and the importance of self-care, family support, and faith.
Length: 4:23
ADPKD and a Second Chance
Tamara shares how she used her "second chance at life" through transplantation to advocate for others.
Length: 4:35
Living Fully with ADPKD
Noelia shares how a life-changing transplant allows her to cherish every moment with her family and advocate for others.
Length: 5:45
Guilt During the PKD Journey
Valen and her family describe the guilt they felt while traversing Valen's lifelong PKD journey.
Length: 3:35
Becoming the Inspiration I Needed
Valen shares her experiences growing up with PKD and wishing she had examples of thriving adult PKD patients she could look up to. As an adult, she has made it her mission to create a kidney community where people can share their journeys.
Length: 4:50
CKD: Emotional Roller Coaster
CKD can strongly affect one’s mental health. Steve chronicles his emotional highs and lows as he navigated his disease.
Length: 3:26
Finding a Positive Outlook
Valen shares how she lives every day with gratitude, which helps her maintain a positive outlook in life even in her darkest days.
Length: 3:24
Self Care While Being a Caregiver
Noah talks about the importance of self-care while taking care of a sick loved one.
Length: 3:51
Taking Control of My Journey: Self-Advocacy
As a patient on a lifelong PKD journey, Valen learned along the way the importance of advocating for herself.
