Kidney Disease

Education Center

Education Center

NephU is an engaged community of health care professionals and advocates collaborating to improve kidney health. The experts at NephU have partnered with OPEN to develop scientifically validated resources that explore topics about living or caring for someone with kidney disease.

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Kidney Health Resources Developed by NephU

Select a category below to find topics related to kidney health and tips for living or caring for someone with kidney disease.

Understanding the IgA Nephropathy Patient Journey

Learn about the IgA Nephropathy patient journey directly from an IgAN patient and nephrology healthcare provider, Kelly Chen.  

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Understanding Kidney Volume in Patients with ADPKD

In patients with PKD, kidneys may keep functioning well for some time, even if they are enlarged with cysts. Tracking your kidney size, or total kidney volume (TKV) can help your doctor predict how quickly may progress for you over time.

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IgAN In Different Populations

How does IgA Nephropathy (IgAN) affect people in different parts of the world?  How common is IgAN from the North America to Africa to Asia?

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What is IgA Nephropathy?

IgA Nephropathy (IgAN) is an autoimmune disease that can lead to inflammation and damage to the filtering units of the kidneys.  It is estimated that 20-40% of affected individuals will develop kidney failure.

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Caring for Yourself While Caring for a Loved One With ADPKD

When you are caring for someone with autosomal dominant polycystic kidney disease (ADPKD), it may be difficult to focus on your needs as well as those of your loved one.

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Talking With Your Family and Friends

Because ADPKD is genetic, meaning it runs in families, it can affect the family as a whole. This is one reason you may find it essential to talk with family about your diagnosis.

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OPEN is sponsored by Otsuka America Pharmaceutical, Inc. The information provided by the OPEN website is intended for educational benefit only, and does not represent medical advice. Speak with a health care professional about your or your loved one's symptoms and illnesses to determine diagnosis and appropriate treatment options.

Every individual's health experience can be different. On this website, participants have shared their personal experiences. Individual experiences may vary.

Participants on the OPEN website may have received reimbursement from Otsuka America Pharmaceutical, Inc. for their participation.

All rights reserved.

September 2023
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