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PKD Family Planning: A Tough Conversation

“I think that’s a tough one for most families to go through knowing that you have polycystic kidney disease in the family and that there’s the 50/50 odds that our next child would also have PKD.”

Sean Williams

Transcript

Sean:

Kate and I had discussed having a second child after having had Owen with polycystic kidney disease, and just the concern of what that means for a potential newborn or a potential child coming into the world.  I remember exactly where we were when we had the conversation.  It was back and forth.  It’s a hard decision to make.  So, I think that’s a tough one for most families to go through knowing that you have polycystic kidney disease in the family and that there’s the 50/50 odds that our next child would also have PKD.

I know before we were married we always talked about having two kids, and when we had Owen with the diagnosis of PKD, it added a different factor to consider.  We know that friends of ours have parents with PKD and no children with PKD.  We know parents that have or families that have a parent with PKD, and all of the children have PKD, and you never know what you’re going to end up with, because it’s a 50/50 odds for each child, and in the end we decided after long conversation that we would take a shot at having a second child and we were fortunate that at this point in time, Campbell does not have PKD.

Kate:

We have two beautiful boys, and we’re really lucky that for a long time we were not sure that we would try again.

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